April 30, 2018

I met Arthur Cohen and his wife Janet at last year's Compassionate Care ALS gala in Boston. We sat next to each other and chatted throughout the night. I adored him immediately. He told me about being a photographer, seeing Hamilton, and his PickALS project to raise mo...

April 26, 2018

So Much, So Fast

This was the first documentary about ALS that I watched. An inspirational and heartbreaking story about architect/builder Stephen Heywood, diagnosed with ALS at age 29, and his brilliant brother Jamie, who became obsessively driven to find a cure. I fel...

April 4, 2018

Chapter 7, baby!!

Okay, what happens next? We need Karina and Richard in the same room again. Actually, I probably need a chapter about her and her life—home, teaching, with Grace. What is unsettled in her and why is seeing Richard again such a necessary risk? What does...

March 28, 2018

I found these pages from my writing journal, a scene from EVERY NOTE PLAYED that never even made it into the first draft. It has its moments, but I see why I didn’t choose to go with it. What do you think?

Chapter 6, baby! What happens next? No idea. I need to loop back...

March 16, 2018

When Stephen Hawking was diagnosed with motor neurone disease (ALS) at the age of 21, he was told he had two years left to live. Astoundingly, he lived another 55 years with this disease. Average life expectancy with ALS is 3 years. About 20 percent of people live five...

March 7, 2018

I met Chris Engstrom at his parents’ house on Cape Cod. He was my age, handsome, scrawny, his strangled voice mostly unintelligible. He was an artist educated at Yale and loved hiking in the woods, but he could no longer walk or hold a paintbrush in his hands. The hiki...

February 28, 2018

From my writing journal….

Okay, clearly I need some time with no kids to bang out some chapters. 9am-noon isn’t enough right now. I’m still at the beginning of the book when there’s so much resistance, and I dick around for too long before starting. Man, I really don’t...

February 20, 2018

It's Oscars season. I love movies and try to catch as many of the Oscar-nominated films as I can before the Academy Awards. So far, I've seen Lady Bird, Three Billboards Ouside Ebbing, and The Post (all great, but my vote goes easily to Three Billboards). And I can't h...

February 13, 2018

I outline my books AFTER I’ve completed the entire first draft. Is that weird? I begin writing most of my chapters with a question: What happens next? The answer is almost always some version of: I have no idea! Don’t freak out! Stay in the seat and find it!

I begin eve...

December 4, 2017

On Friday, I took my two youngest kids to Cape Symphony's CapePOPS! series "Holiday on the Cape." My favorite part of the concert was a medley of holiday songs sung by guest artist Monica Rizzio. My kids were dazzled by her. I get it. I'm dazzled by Monica, too....

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Still Alice Discussion Guide for Readers living with Early Onset and/or Early Stage Alzheimer’s

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