May 29, 2018

I created this guide back in 2007, just before self-publishing STILL ALICE and selling copies from the trunk of my car. I was blogging for the National Alzheimer's Association at the time, and we offered this guide to many of the state chapters. Support groups for peop...

February 20, 2018

It's Oscars season. I love movies and try to catch as many of the Oscar-nominated films as I can before the Academy Awards. So far, I've seen Lady Bird, Three Billboards Ouside Ebbing, and The Post (all great, but my vote goes easily to Three Billboards). And I can't h...

November 16, 2017

So, the Pope, Serena Williams, Lisa Genova, and Elon Musk walk into a bar….

I haven’t yet figured out the perfect witty punch line to follow that setup, but the four of us can be found together in a different kind of sentence which tickles me just as much as any joke. O...

January 24, 2014

I recently attended a 3.5 day “There Is a Bridge” workshop in Stewart, Florida, run by the brilliant Michael Verde of Memory Bridge. Here’s what I had to say about the experience:

“Outside of a cure, the most vital need of people with Alzheimer’s disease and their loved...

June 12, 2012

I can’t really talk about Jenny without including Don. Don is Jenny’s husband. And more than anyone else I’ve met with Alzheimer’s, they are in this experience together.

I meet up with Jenny and Don at a café. Around lunchtime, it’s crowded and noisy with customers. We...

August 1, 2011

Whether you have Alzheimer’s or are of a certain age that you’ve started routinely forgetting where you put your keys, you’re probably hearing a lot about the benefits of “exercising your brain.” We hear this “use it or lose it” philosophy mentioned frequently in sound...

June 1, 2011

Since the release of Still Alice, I’ve had the privilege of talking to a lot of audiences about Alzheimer’s. One of the most common questions people ask me is:

“When I can’t find my keys, how do I know if that’s normal forgetting or a symptom of Alzheimer’s?”

My quick an...

December 1, 2010

I recently read ‘DANCING WITH ROSE: Finding Life in the Land of Alzheimer’s’ by Lauren Kessler. In it, she reveals the inner life of an Alzheimer’s care facility. I liked so much about this book but want to share one part in particular for now.

Early on in her job at th...

November 24, 2010

In the picture I’d seen of Rich on the internet prior to meeting him, he has short brown hair and a full beard covering his face. He’s wearing a white T-shirt under a denim blue, button-down shirt. He is not smiling. He looks menacing. It occurs to me that the photogra...

September 24, 2010

I know a widely-respected neurologist at a prestigious, teaching hospital who once said,

“Treating dementia is like rearranging the chairs on the deck of the Titanic.”

And he’s not alone in the medical community with this philosophy. I’ve heard many stories of doctors, b...