From a Cucumber to a Cure
I met Arthur Cohen and his wife Janet at last year's Compassionate Care ALS gala in Boston. We sat next to each other and chatted...
ALS Film Review
So Much, So Fast This was the first documentary about ALS that I watched. An inspirational and heartbreaking story about...
Notes from My Writing Journal: Walking with Elise
Chapter 7, baby!! Okay, what happens next? We need Karina and Richard in the same room again. Actually, I probably need a chapter about...
Notes from My Writing Journal: The Woman at the Door
I found these pages from my writing journal, a scene from EVERY NOTE PLAYED that never even made it into the first draft. It has its...
Stephen Hawking, 1942-2018
When Stephen Hawking was diagnosed with motor neurone disease (ALS) at the age of 21, he was told he had two years left to live....
Remembering Chris Engstrom
I met Chris Engstrom at his parents’ house on Cape Cod. He was my age, handsome, scrawny, his strangled voice mostly unintelligible. He...